my son has marfans and i am so sad but happy because i know that there are other who need just as much as i do and if there is something i can do too help you or some one you know let me know and just maybe if we work as a team we all can make something a lil better for the next person my prays go out too you all and let me get back too why im happy because i know in my heart that i will help a person in need even if i need because life is all about giving not just taking